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Subject Topic: Asperger`s or PDA ?
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PersonBlue Stripey Kitten
05/10/2013 at 12:00am
 Location: Norfolk Cambs Border
 Outfit: Soulpad 5000-Hybrid-G View Blue Stripey Kitten's Profile View Profile   Reply to Blue Stripey Kitten Reply   Quote Blue Stripey Kitten Quote  
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Hi Coast walkers

Yes, both boys have been through an Assessment Nursery at the Child Development Centre and have seen paediatricians since they were 2.

When youngest son was being diagnosed, I asked the paediatrician about my eldest's ASD diagnosis and he said that everything comes under the same banner now, so the specifics become less important.

I think although there are differences between the various spectrum conditions, they all share the same core issues.


PersonCoast walkers
05/10/2013 at 10:09am
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You were very lucky to have had your boys diagnosed so early in their lives BSK. Child's Parents knew something wasn't quite right back in pre school days, but no one has been 'listening.' They have just struggled on, physically drained at times.

Child's Parent has been to several Parenting courses, but found the Parenting techniques did not work on this child as it did on child's siblings, Parent's feel they are being looked upon as bad Parents as their Child acts differently, so it would be most helpful to have a diagnosis soon so School can realise that this is not just a naughty child after all, but an over anxious one that needs help and lots of reassurance.     

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Coast walkers


PersonCalinyx
05/10/2013 at 11:29am
 Location: aberdeenshire
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Coastwalkers....I know what you mean regarding 'not being listened to'. Our son was diagnosed last year at 9 1/4, in doing so our 17 year old DD was also then confirmed as having ASC. All through both their lives we've said that ASC is in both sides of the family.

We too had the 'poor parenting' claims, yet i had been a nanny for both private families and a boarding school and had been very good at my job. I knew what we were dealing with was more than that.

My DS has been great in that for him knowledge is power, and he knows to try his hardest, but he'll also say that his brain is 'wired differently' and that he does react differently to others. He has less meltdowns at school as they are now understanding of his 'triggers' and so are looking at the remedy before the blow up.

My DD on the other hand, has taken it hard. She walked out of S5 on the first week back after the summer last year. She had always struggled with attendance at school any way as she was always off sick. Now we realise it was just her stress valve and she'd literally sleep for a week. We are slowly moving with her as she has also been confirmed as having depression....which we've been saying for 5 years also.

Keep remembering, these 'experts' only know what they are taught. You know your children better than anyone else. Parental instinct is both very, very strong and is worth more than any degree.


PersonNinja 47
05/10/2013 at 2:30pm
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My Daughter is Autistic,she avoids eye contact at all times if at all possible.That includes members of her close family as well.

 


PersonBlue Stripey Kitten
05/10/2013 at 7:30pm
 Location: Norfolk Cambs Border
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We knew something wasn't quite right before our eldest was 18 months old really. We were in a very close knit antenatal group and it was becoming obvious that he was very different to the others.

It took me 6 months of fighting (I am notoriously stubborn) for them to listen. All I got was "they all develop differently" etc etc. Waiting for anything has always been a struggle for my son, so I made another doctors appointment. Turned up 20 mins early and made him wait in reception. They were running late. Then when we went in to see the Dr I let him loose. He completely freaked, ran around and trashed the entire room.

I got a referral to the Child Development Centre that day. It's a story I keep hearing over and over again. You *know* when something isn't right and yet Doctors will not take parents seriously. I know it's hard to diagnose at a young age but unless they're giving the referrals, no-one knows for sure.

Keep fighting, and use drastic measures if necessary. x


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PersonCoast walkers
05/10/2013 at 9:26pm
 Location: None Entered
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Quote: Originally posted by Calinyx on 05/10/2ooo

Keep remembering, these 'experts' only know what they are taught. You know your children better than anyone else. Parental instinct is both very, very strong and is worth more than any degree.


(Spot on there Calinyx.)

Love your drastic measures BSK.




Post last edited on 05/10/2013 21:36:02

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Coast walkers


PersonCoast walkers
05/10/2013 at 9:42pm
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Out of interest did any of these 'Special Children' have any bad reaction with MMR or other injections as this Child did which required an ambulance trip to hospital ?





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Coast walkers



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