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 Topic: external fixator fitted
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20/1/2013 at 9:42pm
Location: Bootle
Outfit: various tents & A steam train
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Joined: 26/9/2004 Diamond Member 
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Pip had one on for 16 weeks two years ago. At first it was a pain in the neck - he needed help with everything, including getting to the loo.
I found that baths - shallow ones - were easier than a shower. I put a couple of bin bags over the fixator, put a towel in the bath, and helped him.
Not sure of the full detail of your, but we were backward and forwards every weeek to Alder Hey for physio and dressing change. It was funny because teh shape of the fixator that Pip had on mean that he could not wear socks to the foot tended to get rather grubby - improved when they started the hydrotherapy so that it got a wash.
We were advised by the hosptial to use old bedding as the pins can tear stuff. We also took a blanket with us where ever we went. Not only was Pip in a wheelchair when we went out, as he was unsteady on crutches - but that was because of the shape of the frame (his had a heal ring, and this is a common problem with them) - but it also meant that that he could wrap it around the frame to save teh pins catching if we were in somebody's house. Saw others in clinic who were perfectly able to get by with just crutches.
Much of it adapting to what could or could not be done when the thing was on - and for me it was like having a baby again, because I had to take him everywhere - no more nipping to the shops, because I was afraid tha the might have a fall.
Yet I have a photo of Pip, complete with his crutches, playing on the trampoline.
We were so lucky with Pip as his was only on for sixteen weeks - we were told that this was the minimum time, and were prepared for longer as Pip's bones are not as strong as they should be.
The surgeon was amazed when the 16 week xray showed that the op had been a major success and that he could have the fixator removed. The op to remove it was a day case - whereas he was in hospital a week when he had it fitted.
He went back to see the specialist last week and everything is still fine - back in a year.
Hope that the infection clears up - we were warned that these are common (we were lucky as Pip didn't get one), so it is not just you. Also when I was in my weekly clinic visits, you would see the same kids week after week - and you would find the mums saying that Billy or whoever had had an infection.
Wishing you a speedy recovery from you infection so that you can get out of hopital and get on with your life. It will take a couple of weeks to get used to having the thing - but it will soon become second nature.
Oh and I recommend Primark for cheap jogging bottoms that you can cut up to accomodate the damned thing.
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