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Subject Topic: Finally, but why so long... Post Reply Post New Topic
Personthesixkings
03/9/2013 at 11:18pm
 Location: Northamptonshire
 Outfit: Ford Galaxy & Elddis Odyssey 505 View thesixkings's Profile View Profile   Reply to thesixkings Reply   Quote thesixkings Quote  
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Our son who is 10yrs old has just been diagnosed ( for want of a better word) with Autism, only taken 7yrs.
I cried happy relieved tears which may sound strange to some but after lots of finger pointing, labelling, exclusions and all from his last school it has been a long road. Finally all the puzzle pieces fit.
His current school of 2yrs are fantastic and understood him from week 1 and always try and work through his difficulties with him. So why couldn't his previous school of 3yrs they never tried to understand him or take my concerns seriously even with all the intervention we had. To the point that we removed him and homeschooled him for a time

Just want to say we as parents grandparents know our children and can give the best insight, some may think we are pushy and overprotective. But you cannot give up, do your research always good to put a 'professional' on the back foot.

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Watermouth Cove - Easter
Carsington Water - May
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Coniston Park - August


Personpath20
03/9/2013 at 11:30pm
 Location: Lancashire
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So glad you have eventually got a diagnosis. My grandson was the same but fortunately was diagnosed at seven years old. It's surprising what a relief it is to know what it is and how something can now be done to help him.


PersonLynm
03/9/2013 at 11:35pm
 Location: Ceredigion
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This attitude from some schools never fails to shock me. I notice you live in the same county as me so I wasn't surprised; some schools there need to get in the 21st century.They need to listen to parents & family & pursue each avenue. Only when that is done can they say if you have been wrong.
I am a retired head & for all of my 16 years in that job was always shocked at the number of children & parents I met who had been through the same thing at other schools.
Why so long? Because some schools would rather blame the child/parents that actually doing the work necessary to look into it.
Good for you for fighting on and finding the right place.Good luck with all you face but what a lucky boy to have parents who don't give up.
For any other parents out there you have the legal right to demand a school calls in someone to do an assessment, they don't tell you that but you do. Look on-line & in Northamptonshire look for SNIP.They will advocate for you free.


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Lyn xxx
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Personthesixkings
03/9/2013 at 11:39pm
 Location: Northamptonshire
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Thanks path20 his school now are brilliant and basically have been working with him and put measures in place since he arrived and before a diagnosis as they said he had all the traits. I'm not sure if they can apply for additional funding for him now but it also puts me in touch with other agencies especially now with looking at high schools for next year. This is all I have been pushing for really, not for an excuse for his behaviour but for support and a level of understanding.
Thought we were going to have a meltdown yesterday in tesco trying on uniform but luckily was quickly averted.

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Watermouth Cove - Easter
Carsington Water - May
Sandringham - June
Dockray Meadow -August
Coniston Park - August


Personhattytheherald
04/9/2013 at 9:42am
 Location: Surrey
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Congratulations on the diagnosis. I know when we received it for our son, then aged 6, it was a relief, although like you we knew from a early age.

You're very lucky having the school working with you and your son which is not always the case. My son attends a specialist asd unit and at 10 to 5 last night (he started back this morning) they phoned to tell me that they were changing how they were teaching them and that all the classrooms in the unit had been totally changed with him loosing his individual work station. Urm autistic children like a bit of notice of change?

For additional funding we were refused an assessment for a statement til we had the diagnosis so you or the school may now be able to apply for an assessment, another fight ahead for you!

Good luck

Vanessa


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PersonCampernic
04/9/2013 at 4:51pm
 Location: Northern Ireland
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My friends daughter was so long in diagnosis that the family went private. Now the school is accusing them of 'buying their diagnosis' even though it was the same health professional. The school in question claim she is unteachable and in the end the parents removed her from school, home schooled her for a year and have now got her into a school where they have slowly introduced her to a full time timetable.

My son never received a diagnosis. If he is ASD he's very mild so we left it, as my son expressed a wish for the investigation into ASD and Dyspraxia to stop. The process was stressing him out and he just wanted the fussing to go away. He's about to turn 17 and he's happy even if he's in his own wee world. We respect his right to be who he it and work around it. His school haven't been too bad .


Persondianebb72
04/9/2013 at 6:47pm
 Location: North Yorkshire
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my son was diagnosed when he was 8 years old, I knew when he was a baby something was not quite right despite being a first time Mum, he saw a psychologist once when he was 3 but they just prescribed a star chart, he also had to have speak therapy (which is one of the indicators apparently). It was also a relief for me to get the diagnosis as it explained so much. We also had many problems at school but the SEN department were really good and helped him through school, he's off to university on Sunday which has made me really happy. The diagnosis gives them and you the help that is needed, hope you get all the help you all need

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-x- Diane -x-

May 13 - Cala Gogo, St Cyprien (didn't go, hubby too ill to travel)
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August 13 - Camping Playa Brava, Pals


PersonGram
04/9/2013 at 7:51pm
 Location: Padded Cell
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Dr Miriam Stoppard mentioned a report published earlier this year that indicates autism can may possibly go "into remission" or "cure itself"; several cases are mentioned where the children have proven superior in some facets to children who have not been autistic.
As Dianne says, "..he's off to university on Sunday..", proving that point.

Gram

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What's the difference between a chicken?


PersonNinja 47
04/9/2013 at 8:16pm
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My daughters nursery said she was shy but the school picked up on her problems within a week and we had an autism diagnosis by 6.

She goes to a special secondary school now but when in mainstream primary it did seem a continual battle to get increased support which was for the last 3 years 1 to 1 full time support.

I do worry what her future  holds,i doubt she will ever be able to function as an independent adult but she has pleasently surprised me before so who knows?


Personsavanne1
04/9/2013 at 11:02pm
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I know exactly how you feel sixkings. Our son is autistic and was diagnosed aged 5 luckily but only because I would not stop pestering and asking for help/assessments. His speech was significantly delayed too. His nurseries (of which there were several as they kept asking us to take him out) were next to useless and we saw a paediatrician from the age of 2 but was told repeatedly I was an over anxious mother!!
When he started school he was referred to an ed psych and within 6 months the assessments were done and he was diagnosed. I vividly remember the day, I too cried with relief as you start to question yourself and doubt yourself. The tutting, comments etc from parents, people out and about continued and it was awful. There is so much lack of understanding out there. He was statemented and got full time 1 to 1 in mainstream but unfortunately the head was a control freak with no understanding or interest in ASD. Our son had excellent learning support workers who were controlled very closely with the head who completely mismanaged him. He was also on the phone to me so many times and going to see him was a regular occurrence. He would tell us off!! It got to the point he couldn't be taught in the classroom and couldn't cope with the amount of people and noise so he was taught in a corridor for nearly a year. I put my foot down at his y5 annual review and asked for him to be moved to a special school specialising in ASD. After massive struggles with the LEA and then the funding of the transport we got him a place. He stayed there til he was 16 and managed very successfully the transition to college and is doing IT which is his obsession. He did well in his GCSEs and I was so tempted to send the primary school head a copy as he had basically written Adam off. The special school wasn't 100% right for our son but a lot less stressful for him and we didn't have to constantly explain his needs and his behaviours, they had the experience, understood and dealt with him to the best of their abilities. After years of worrying I finally felt he was safe at school and with people who understood him.
You will go through a real range of emotions, there is help out there. The national autistic society we always found helpful and we did a brilliant course with them locally after he was diagnosed. Are you aware your son will probably be eligble disability living allowance? Its worth looking into as I'm sure like my son he needs more care than a non ASD kid.


Post last edited on 04/09/2013 23:10:47

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