Home

   Log in or Register



Insurance Quotes
forums Campsite Search Comp Directory tips virtual brochure Profile
Tent and Awning Reviews Competitions Caravans and Motorhomes For Sale Shopping Diary Advent Calendar

Advertisement

Message Forums
Welcome Guest Register Login Search The Forum Posts Since Last Visit
 Reception - All Forums
  Life in General 		Share   Post on X / Twitter  Share on Facebook  Email  Printer Friendly Version Print
Subject Topic: Finally, but why so long... Post Reply Post New Topic
Personthesixkings
03/9/2013 at 11:18pm
 Location: Northamptonshire
 Outfit: Ford Galaxy & Elddis Odyssey 505 View thesixkings's Profile View Profile   Reply to thesixkings Reply   Quote thesixkings Quote  
Joined: 16/1/2007

Platinum Member
Platinum Member

Forum Posts:   622
Site Reviews Total: 2
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0
Our son who is 10yrs old has just been diagnosed ( for want of a better word) with Autism, only taken 7yrs.
I cried happy relieved tears which may sound strange to some but after lots of finger pointing, labelling, exclusions and all from his last school it has been a long road. Finally all the puzzle pieces fit.
His current school of 2yrs are fantastic and understood him from week 1 and always try and work through his difficulties with him. So why couldn't his previous school of 3yrs they never tried to understand him or take my concerns seriously even with all the intervention we had. To the point that we removed him and homeschooled him for a time

Just want to say we as parents grandparents know our children and can give the best insight, some may think we are pushy and overprotective. But you cannot give up, do your research always good to put a 'professional' on the back foot.

-------------
Watermouth Cove - Easter
Carsington Water - May
Sandringham - June
Dockray Meadow -August
Coniston Park - August


Personpath20
03/9/2013 at 11:30pm
 Location: Lancashire
 Outfit: None Entered View path20's Profile View Profile   Reply to path20 Reply   Quote path20 Quote  
Joined: 31/8/2005

Platinum Member
Platinum Member

Forum Posts:   1413
Site Reviews Total: 4
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 1  
Site Reviews 2020: 0  
Site Reviews 2019: 1  
Site Reviews 2018: 1  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 7
Site Nights 2020: 0
Site Nights 2019: 4
Site Nights 2018: 1
So glad you have eventually got a diagnosis. My grandson was the same but fortunately was diagnosed at seven years old. It's surprising what a relief it is to know what it is and how something can now be done to help him.


PersonLynm
03/9/2013 at 11:35pm
 Location: Ceredigion
 Outfit: Swift Archway Sport 21 2 View Lynm's Profile View Profile   Reply to Lynm Reply   Quote Lynm Quote  
Joined: 30/5/2005

Platinum Member
Platinum Member

Forum Posts:   568
Tent Reviews:   3
Site Reviews Total: 93
Site Reviews 2024: 4  
Site Reviews 2023: 2  
Site Reviews 2022: 1  
Site Reviews 2021: 2  
Site Reviews 2020: 0  
Site Reviews 2019: 3  
Site Reviews 2018: 6  
Site Nights 2024: 14
Site Nights 2023: 8
Site Nights 2022: 6
Site Nights 2021: 9
Site Nights 2020: 0
Site Nights 2019: 13
Site Nights 2018: 6
This attitude from some schools never fails to shock me. I notice you live in the same county as me so I wasn't surprised; some schools there need to get in the 21st century.They need to listen to parents & family & pursue each avenue. Only when that is done can they say if you have been wrong.
I am a retired head & for all of my 16 years in that job was always shocked at the number of children & parents I met who had been through the same thing at other schools.
Why so long? Because some schools would rather blame the child/parents that actually doing the work necessary to look into it.
Good for you for fighting on and finding the right place.Good luck with all you face but what a lucky boy to have parents who don't give up.
For any other parents out there you have the legal right to demand a school calls in someone to do an assessment, they don't tell you that but you do. Look on-line & in Northamptonshire look for SNIP.They will advocate for you free.


-------------
Lyn xxx
Harbury Fields March
Moreton in the Marsh March/April
Hawthorn Cottage April
Lamb Cottage April
Somers Wood May
Maxstoke Hall June
Houghton Mill June
Lamb Cottage August
Somers Wood September
The Meadows, October


Personthesixkings
03/9/2013 at 11:39pm
 Location: Northamptonshire
 Outfit: Ford Galaxy & Elddis Odyssey 505 View thesixkings's Profile View Profile   Reply to thesixkings Reply   Quote thesixkings Quote  
Joined: 16/1/2007

Platinum Member
Platinum Member

Forum Posts:   622
Site Reviews Total: 2
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0
Thanks path20 his school now are brilliant and basically have been working with him and put measures in place since he arrived and before a diagnosis as they said he had all the traits. I'm not sure if they can apply for additional funding for him now but it also puts me in touch with other agencies especially now with looking at high schools for next year. This is all I have been pushing for really, not for an excuse for his behaviour but for support and a level of understanding.
Thought we were going to have a meltdown yesterday in tesco trying on uniform but luckily was quickly averted.

-------------
Watermouth Cove - Easter
Carsington Water - May
Sandringham - June
Dockray Meadow -August
Coniston Park - August


Personhattytheherald
04/9/2013 at 9:42am
 Location: Surrey
 Outfit: Esterel C39 View hattytheherald's Profile View Profile   Reply to hattytheherald Reply   Quote hattytheherald Quote  
Joined: 08/6/2012

Standard Member
Standard Member

Forum Posts:   17
Site Reviews Total: 5
Site Reviews 2024: 1  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 11
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0
Congratulations on the diagnosis. I know when we received it for our son, then aged 6, it was a relief, although like you we knew from a early age.

You're very lucky having the school working with you and your son which is not always the case. My son attends a specialist asd unit and at 10 to 5 last night (he started back this morning) they phoned to tell me that they were changing how they were teaching them and that all the classrooms in the unit had been totally changed with him loosing his individual work station. Urm autistic children like a bit of notice of change?

For additional funding we were refused an assessment for a statement til we had the diagnosis so you or the school may now be able to apply for an assessment, another fight ahead for you!

Good luck

Vanessa


Advertisement



PersonCampernic
04/9/2013 at 4:51pm
 Location: Northern Ireland
 Outfit: Bell Tent Vango Coleman and Quechua View Campernic's Profile View Profile   Reply to Campernic Reply   Quote Campernic Quote  
Joined: 28/4/2013

Diamond Member
Diamond Member

Forum Posts:   1660
Tent Reviews:   1
Site Reviews Total: 5
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0
My friends daughter was so long in diagnosis that the family went private. Now the school is accusing them of 'buying their diagnosis' even though it was the same health professional. The school in question claim she is unteachable and in the end the parents removed her from school, home schooled her for a year and have now got her into a school where they have slowly introduced her to a full time timetable.

My son never received a diagnosis. If he is ASD he's very mild so we left it, as my son expressed a wish for the investigation into ASD and Dyspraxia to stop. The process was stressing him out and he just wanted the fussing to go away. He's about to turn 17 and he's happy even if he's in his own wee world. We respect his right to be who he it and work around it. His school haven't been too bad .


Persondianebb72
04/9/2013 at 6:47pm
 Location: North Yorkshire
 Outfit: Sterling Europa 460 NT View dianebb72's Profile View Profile   Reply to dianebb72 Reply   Quote dianebb72 Quote  
Joined: 13/5/2005

Diamond Member
Diamond Member

Forum Posts:   5574
Tent Reviews:   2
Site Reviews Total: 0
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0
my son was diagnosed when he was 8 years old, I knew when he was a baby something was not quite right despite being a first time Mum, he saw a psychologist once when he was 3 but they just prescribed a star chart, he also had to have speak therapy (which is one of the indicators apparently). It was also a relief for me to get the diagnosis as it explained so much. We also had many problems at school but the SEN department were really good and helped him through school, he's off to university on Sunday which has made me really happy. The diagnosis gives them and you the help that is needed, hope you get all the help you all need

-------------
-x- Diane -x-

May 13 - Cala Gogo, St Cyprien (didn't go, hubby too ill to travel)
May 14 Ranc Davaine
August 14 Les Sablons
August 13 - Camping Playa Brava, Pals


PersonGram
04/9/2013 at 7:51pm
 Location: Padded Cell
 Outfit: Calvin Klein Straitjacket & manacles View Gram's Profile View Profile   Reply to Gram Reply   Quote Gram Quote  
Joined: 22/9/2004

Diamond Member
Diamond Member

Forum Posts:   2931
Site Reviews Total: 2
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0
Dr Miriam Stoppard mentioned a report published earlier this year that indicates autism can may possibly go "into remission" or "cure itself"; several cases are mentioned where the children have proven superior in some facets to children who have not been autistic.
As Dianne says, "..he's off to university on Sunday..", proving that point.

Gram

-------------
What's the difference between a chicken?


PersonNinja 47
04/9/2013 at 8:16pm
 Location: None Entered
 Outfit: None Entered View Ninja 47's Profile View Profile   Reply to Ninja 47 Reply   Quote Ninja 47 Quote  
Joined: 02/1/2012

Silver Member
Silver Member

Forum Posts:   191
Site Reviews Total: 5
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0

My daughters nursery said she was shy but the school picked up on her problems within a week and we had an autism diagnosis by 6.

She goes to a special secondary school now but when in mainstream primary it did seem a continual battle to get increased support which was for the last 3 years 1 to 1 full time support.

I do worry what her future  holds,i doubt she will ever be able to function as an independent adult but she has pleasently surprised me before so who knows?


Personsavanne1
04/9/2013 at 11:02pm
 Location: 
 Outfit:  View savanne1's Profile View Profile   Reply to savanne1 Reply   Quote savanne1 Quote  
Joined: 02/8/2006

Diamond Member
Diamond Member

Forum Posts:   7295
Tent Reviews:   2
Site Reviews Total: 23
Site Reviews 2024: 0  
Site Reviews 2023: 0  
Site Reviews 2022: 0  
Site Reviews 2021: 0  
Site Reviews 2020: 0  
Site Reviews 2019: 0  
Site Reviews 2018: 0  
Site Nights 2024: 0
Site Nights 2023: 0
Site Nights 2022: 0
Site Nights 2021: 0
Site Nights 2020: 0
Site Nights 2019: 0
Site Nights 2018: 0
I know exactly how you feel sixkings. Our son is autistic and was diagnosed aged 5 luckily but only because I would not stop pestering and asking for help/assessments. His speech was significantly delayed too. His nurseries (of which there were several as they kept asking us to take him out) were next to useless and we saw a paediatrician from the age of 2 but was told repeatedly I was an over anxious mother!!
When he started school he was referred to an ed psych and within 6 months the assessments were done and he was diagnosed. I vividly remember the day, I too cried with relief as you start to question yourself and doubt yourself. The tutting, comments etc from parents, people out and about continued and it was awful. There is so much lack of understanding out there. He was statemented and got full time 1 to 1 in mainstream but unfortunately the head was a control freak with no understanding or interest in ASD. Our son had excellent learning support workers who were controlled very closely with the head who completely mismanaged him. He was also on the phone to me so many times and going to see him was a regular occurrence. He would tell us off!! It got to the point he couldn't be taught in the classroom and couldn't cope with the amount of people and noise so he was taught in a corridor for nearly a year. I put my foot down at his y5 annual review and asked for him to be moved to a special school specialising in ASD. After massive struggles with the LEA and then the funding of the transport we got him a place. He stayed there til he was 16 and managed very successfully the transition to college and is doing IT which is his obsession. He did well in his GCSEs and I was so tempted to send the primary school head a copy as he had basically written Adam off. The special school wasn't 100% right for our son but a lot less stressful for him and we didn't have to constantly explain his needs and his behaviours, they had the experience, understood and dealt with him to the best of their abilities. After years of worrying I finally felt he was safe at school and with people who understood him.
You will go through a real range of emotions, there is help out there. The national autistic society we always found helpful and we did a brilliant course with them locally after he was diagnosed. Are you aware your son will probably be eligble disability living allowance? Its worth looking into as I'm sure like my son he needs more care than a non ASD kid.


Post last edited on 04/09/2013 23:10:47

-------------
Thistledown Easter
Nantcol June
Domaine du Verdon Castellane and Etoile d'Argens Frejus Aug



In order to post a reply you will need to register, or if already registered please log in here

Prev       Next
Quick Links - All Forums - Life in General - Top of Page

Printer Friendly Version Printable version      Share   Post on X / Twitter  Share on Facebook  Email


Latest News, Discounts and Competitions  see all...

9940 Visitors online !

Free UKCampsite.co.uk Window Sticker  -  Recommend to Friend  -  Add a Missing Campsite

[Message Forums]  [Caravan Sites & Camping]  [Company Listings]  [Features / Advice]  [Virtual Brochure]  [Shop!]
[Reception]  [Competitions]  [Caravans & Motorhomes For Sale]  [Event Diary]  [Contact Us]  [Tent Reviews] 



Please note we are not responsible for the content of external sites & any reviews represent the author's personal view only. Please report any error here. You may view our privacy and cookie policy and terms and conditions here. All copyrights & other intellectual property rights in the design and content of this web site are reserved to the UKCampsite.co.uk © 1999 - 2024


Advertisement
Advertisement


UKCampsite.co.uk
2024 Advent Calendar

Advent Calendar

24 Daily Prizes PLUS a Christmas Day Star Prize worth £999

Request a Reminder