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Subject Topic: Camping with disabled child - advice Post Reply Post New Topic
11/8/2011 at 11:16am
 Location: Christchurch Dorset
 Outfit: Coleman Modulus x7
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Hi, we are a family of 4 and youngest son has quad CP and is wheelchair bound and husband also has mobility issues. We've just been given our first tent (Coleman Modulus x7) and I can't wait to start using it. We haven't been camping before as a family (I was a seasoned camper with the girl guides many moons ago and son is a cub) but I thought it would be a great way to get away cheaply and without worrying if holiday accomodation will be suitable! I really want to know if anyone has tips for equipment that we should be buying to make life easier and more comfortable for us. My main concerns for my son are the cold as he feels it more than most and am thinking a windbreak would be a good idea and possibly a porta-loo type thing for hubby. Basically we have no equipment yet so need everything and really want to go prepared so our first camp trip is succesful and comfortable and doesn't put us off! We have a large accessible van so we have room to pack a lot of gear and will be probably camp for a long weekend on our first trip. Any advice much appreciated


11/8/2011 at 11:29am
 Location: Yorkshire
 Outfit: Gelert Horizon 8
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HI - glad to hear you are going camping.

Don't be tempted by buying too much gear to fill your van - it all needs putting up when you get there!

As for keeping warm - we take our winter duvet (going to get vacuum bags this time to reduce size) and we also put a blanket on top. The kids all have hot water bottles which i put in their bed about 10 minutes before they get in. I managed to get some fleecy all in one pyjama's from primark for them (they wear ordinary pj's underneath, in case they need to go to the loo in the night).

On our first trip, we took a lot of things from home until we had an idea of what 'official' camping gear to buy - sounds like you might have the room to do this in your van. You can then go on a more informed shopping trip after your first camp (and then shop, and shop...it never ends )

Let us know how you get on with pics if possible (even though I still haven't figure out how to do that yet!)


11/8/2011 at 11:33am
 Location: Christchurch Dorset
 Outfit: Coleman Modulus x7
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Thanks, I did think about the all in ones, my boys have them, and was looking at an airbed that has raised sides so son doesn't fall off (he couldn't get back on by himself) just waiting to do a practise pitch of the tent but it's been raining all morning!


11/8/2011 at 11:43am
 Location: Yorkshire
 Outfit: Gelert Horizon 8
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Your son's wheelchair will likely bring grass on the wheels into the tent I imagine, so don't forget your dustpan and brush, otherwise it will drive you mad! My kids are in and out constantly - if its raining the tent gets muddy, if it's fine its grass. It's a no win situation. Even though they take their shoes off, it still manages to get everywhere!

There was a thread on here a few days ago about raised airbeds for the disabled or those with bad backs - can anyone post the link?? Sorry I don't know how to do that either!


11/8/2011 at 12:12pm
 Location: Christchurch Dorset
 Outfit: Coleman Modulus x7
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Quote: Originally posted by mohjy on 11/8/2011
Your son's wheelchair will likely bring grass on the wheels into the tent I imagine, so don't forget your dustpan and brush, otherwise it will drive you mad! My kids are in and out constantly - if its raining the tent gets muddy, if it's fine its grass. It's a no win situation. Even though they take their shoes off, it still manages to get everywhere!

There was a thread on here a few days ago about raised airbeds for the disabled or those with bad backs - can anyone post the link?? Sorry I don't know how to do that either!




Yeah, I bet it will get a bit messy, I had been looking at some bigger tents that had a bit of porch space that we could leave his wheelchair in and take a different seat for him to use inside but we were given the tent we have for free so will make do. I have a massive raised airbed for us, just hope it fits in alright!


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11/8/2011 at 2:21pm
 Location: Northumberland
 Outfit: vango illusion 800
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hello Gemconyard,

Welcome to the site. The KampaKhazi is a good toilet (sturdy) for night times.  You might want to consider getting electrical hook up (EHU) and then buying a small fan heater (Argos sell one for around £15) you can use it to take the chill out of the air for your son.  The other thing to do is insulate you from the airbeds.  Use sleeping bags or duvets (or fleece undersheets from Wilkinsons) on top of the airbed and then a sheet before you put your duvet on otherwise your body will try to heat up all the air in the airbed making you very cold!

The thing that puts most off of camping is being cold cos it makes us miserable so as long as you plack plenty of warm clothing too you should be ok.  Another tip is to get everyone in their PJ's before it gets too cold - your body warms them up nicely and there is nothing worse then putting on cold PJs and then getting in a cold bed!

Camping is fun and I am sure you will all enjoy it - all the fresh air and quality time together without a tv or computer - my little one loves it.

Jewels



-------------
Jewelsm - a fair weather camper

August 2013, 14, 15, 16 & 17-Trevornick for two and a half weeks of sea and surf (and ever optimistic -lots of sun). Some other weekends if I can persuade DH


11/8/2011 at 2:35pm
 Location: Bootle
 Outfit: various tents & A steam train
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Definately get some sort of loo for night time.  Some are steadier than others so have a look around as you will know how steady you need.
Keep warm with layers.  Fleecy blankets are great for this.  These are so eay to get hold of, in vrous sizes and prices.   Self Inflating Mats (SIMS) are warmer than airbeds.     Picnic rugs under the beds helps.

Check that the site does have a disabled toilet/shower room.    Although many site do, there are still some that don't.



12/8/2011 at 11:04pm
 Location: Mcr
 Outfit: Gelert Horizon 8
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Hi,i would take a cartridge stove,they are easy to set up.dont take too much stuff it takes ages packing it all up.Enjoy.


13/8/2011 at 9:42am
 Location: Shropshire
 Outfit:  Karsten 3m with sleeping unit Kos 6
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Hiyas & welocme to UKcs, if cold is your main concern remember layers are best way to go ...add or takle away as needed. Insulation under & ontop of your airbed is also very necessary. We take duvets & vac pack them ...hate inflatable pillows so take our own flat packed too. We use fleece mattress protectors 1st on our beds then a fitted sheet ( camped in garden other night & my usual camping stuff was all vac packed so used kids disney fleece blankets instead of the fitted fleece 1's works just as well.) We also put either cheap picnic rugs/ aldi quilted blankets under the airbeds to insulated from cold ground. Other stuff is just what you would use at home pots pans cutlery etc...maybe as you get more into camping you may want to buy specific items for this.

Im unsure as to how much your younest is able to move on his own or how he sits ...so maybe another important buy for you will be seating & table ...obviously this is going to have to suit your needs & maybe best to go around various camping shops to see what will fit the bill.

We have the kampa khazi & wouldn't be without it. Its very sturdy & you lift out the fitted bucket pop on the lid & empty it at the waste site.

Other than all of that enjoy im sure you will as many people on here have in some form or another a disability or family member with 1 & camping gives you a whole new range of holiday places.

Madz.



13/8/2011 at 10:41am
 Location: west yorkshire
 Outfit: Gelert merdian 8
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I don't know if you've heard of it but http://www.specialkidsintheuk.org/ might be the place to start. I know they have a group camp every summer so there are definitely campers there who might be able to give you some ideas.


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13/8/2011 at 11:44am
 Location: B&NES
 Outfit: Luna Conquest
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It's important to remember that pushing a wheelchair over grass or gravel is a lot harder than pushing one over a hard surface.


13/8/2011 at 2:57pm
 Location: Sheffield
 Outfit: Kampa Croyde 6
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Hi,

As regards to you little fella falling out of bed, i use
on of these for my little boy.

http://www.ukcampsite.co.uk/redirect.asp?redir=http://www.towsure.com/product/Easy_Bed_Junior_Blue

He sleeps reallly well in it and the sides are actually higher than they look in the piccy, there are internal measurements so you should be able to see if its big enough.

Hope this helps, im sure you will all have a fab time :)


13/8/2011 at 3:03pm
 Location: Christchurch Dorset
 Outfit: Coleman Modulus x7
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Quote: Originally posted by pillsley on 13/8/2011
It's important to remember that pushing a wheelchair over grass or gravel is a lot harder than pushing one over a hard surface.

We have an all-terrain wheelchair just for that! As we live nr the new forest it's a godsend.


13/8/2011 at 9:30pm
 Location: None Entered
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hi can see someone else has linked to special kids in the uk.We have just come back from week in Wem where lots of us camp and  have chiuldren with special needs .There is a free guest board pop over and ask we are friendly bunch .

 

after a week at camp there it has convinved me to give camping a go .my youngest has sn which affecty moblity and im a f/t chair user to .

for me a EHU is a must for  heater against the cold ..also think about height for changing/dressing your son .Not sure how old he is also how your husband is with getting out of a low bed I am looking at one of these http://www.aerobed.co.uk/pages/compare.asp?affno=101&gclid=COCIhdOIzaoCFQEf4Qod2Qi7zA

to making transfer easier .Also not sure of size of your son but have been told that it may be worth getting a stronger tarp underneath as theres more compacted weight in a chair and obviously turning it.So will help prevent more damage



13/8/2011 at 9:56pm
 Location: Christchurch Dorset
 Outfit: Coleman Modulus x7
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Quote: Originally posted by des73 on 13/8/2011

hi can see someone else has linked to special kids in the uk.We have just come back from week in Wem where lots of us camp and  have chiuldren with special needs .There is a free guest board pop over and ask we are friendly bunch .

 

after a week at camp there it has convinved me to give camping a go .my youngest has sn which affecty moblity and im a f/t chair user to .

for me a EHU is a must for  heater against the cold ..also think about height for changing/dressing your son .Not sure how old he is also how your husband is with getting out of a low bed I am looking at one of these http://www.aerobe
d.co.uk/pages/compare.asp?
affno=101&gclid=COCIhdOIzaoCFQEf4Qod2Qi7zA

to
making transfer easier .Also not sure of size of your son but have been told that it may be worth getting a stronger tarp underneath as theres more compacted weight in a chair and obviously turning it.So will help prevent more damage




Thanks for all that, I have a few friends on FB that go to the special kids camp (Mags Hall?), I'd love to look at that for next year. managed to buy an aired with sides today at the range, don't think it will last him long as he's growing so fast but saw some paddling pools while shopping and thought I'd be able to pad the bottom out of one for those when he gets bigger.   Good idea to get the extra tarp, he's only little but I think it will make the whole thing last longer. We have a double height air- bed that my husband can get in and out of but it doesn't fit in the inner pod. Have spent all afternoon playing about with black out fabric to stick to the windows as stupidly the curtains are only on the pod and not the outer tent so we can use the bed and have a bit more room to move. Am knackerd now, hope the camping trip is more relaxing than the planning!


13/8/2011 at 10:07pm
 Location: None Entered
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Hi

 

next years is the 8-15th August back in Wem you need to be verfied member but is £10 forlifetime but worth it we also have a fun day and communal bbq and a tea ent with a always running urn so always hotwater for that cuppa  its really more towards glamping but is a lot of fun and is subsides some for verfied members

and yes I know Mags  .someone on there uses what loosk like 2 long sausages linked by material and inflate them so light to transport but helps with not rolling of 




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